Not that I’m obligated to share any of my personal life with the public but there is a sense of fair play as to why I’m writing this post. When I started the GRTP back in February I had the knowledge that this spring would be a stressful time for the Lang house.
You see – our yet to be born daughter, at the time, was diagnosed with a rare congenital heart defect called Hypo-Plastic Left Heart Syndrome or HLHS. Here’s a really good link about what it is if you’re part medical geek – https://health.google.com/health/ref/Hypoplastic+left+heart+syndrome
Her due date was in early April and we expected to have our daughter home by the end of May. I thought I was doing pretty well: just brought on Will Hartwell as a partner, High Tech walking tour was on track, we launched NOW…GR Tech Calendar and all while I spent 6 out of 7 days at University of Michigan’s Mott Children’s Hospital in Ann Arbor. Our daughter was to have the first of three open heart operations within a week of her birth – which she did.
Unfortunately being at the center of the HLHS universe with the best doctors and nurses around – it wasn’t enough. Our precious little daughter Arawynn died after 43 days of fighting for her life. It’s still raw for me. I sometimes sit in her room and cry with my wife.
On reflection – we go through life in this AMAZING technological world we’ve built. We live with the greatest and most advanced technology EVER! Information Tech, Medical Tech, Computing Tech, etc… We create more data daily than was ever created prior to the millennium. We think of ourselves as the smartest, savviest population to ever walk the earth.
The fact is with as much as we think we know – we don’t know much at all.
Now why write this on Computing the Rapid Cloud?
I’m the Founder and I wanted to be transparent as to why things were gaining momentum for GRTP and then suddenly stopped. Plus I wanted to have a say about how cloud based computer technology helps up though this time.
You gotta know the cloud is where it’s at. I mean Google, FaceBook, Twitter, FourSquare, ect… wouldn’t exist the way we enjoy them without this type of technology platform. Going through this hard time I am totally grateful for them.
I mean can you imagine standing in the intensive care cardiac unit, where a fraction of 1% of Michigan’s sickest kid are, and making 100 phone calls to whom ever asking them to start praying because your daughter just went into a progressive cardiac arrhythmia? No that would suck and drain me away from being present in that situation.
What am I doing in that situation to help…..well nothing since I’m not a doctor but being present is all you have when you’re in the situation of only watching someone else be your daughter’s hero. With that my family were and still are people with a big faith in God. So being able to communicate to around 100 people on FaceBook, Twitter and my Gmail in a matter of seconds that we need some prayer – is a powerful testament to the technology.
With services like Picasa, and yes I do drink a lot of Google Kool-Aid, I can take a picture with my smartphone and can instantly upload it for our friends and family to see. By the way I do have a Android device – Moto Droid. So I’m assuming that a great many of you that may be reading this already know the tech geek side of what I’m saying. But let me be clear; being able to rely on this technology was something that allowed us to concentrate on “quality of life” matters vs. having to communicate to an extended number of family and friends that were genuinely interested in what was going on with us.
It allowed us to be present and others to be present as well. I read some drivel on the web recently about keeping your drama and problems off your FaceBook and other social media. What those authors fail to realize is the “Social” part of social networks. It’s not just for “Hey I’m here drinking this and having a good time with them”. Social is about being able to communicate what you want / need to when you need to.
It allows others to participate in your life and isn’t that what we all here to do? Isn’t that what this great new social technology is here to help facilitate? Participation in each others lives in a healthy way?
Because of this technology I was able to give the gift of allowing others to be involved in our lives in a very intimate way. Most importantly it allowed me to be present for my daughter and that presence is the most valuable thing I could have.
C’ya in the Cloud